I’m Alive Because of a DCD Organ. The Truth Deserves to Be Heard.On February 13, 2024, I became one of the thousands of people whose lives have been saved by donation after circulatory death (DCD)...
Global Liver Institute Launches Inaugural Patient and Scientific Advisory Council(Washington, D.C., August 20, 2025) – Global Liver Institute (GLI), the premier patient-driven liver health...
Congress Begins Work to Advance Appropriations Bills, Looks Ahead to Possible Package of Health Policies GLI was pleased to see liver health priorities included in appropriations bills and intends...
United Voices for Liver HealthA Note from the Director, Dr. Sharon H. Jaycox Advocacy in Liver Disease: Bridging Knowledge, Empathy, and Action Uniting Patients and Doctors Through Education and...
Advocacy in Action: A Global Call to Address Liver CancerA Note from the Liver Cancers Program Director, Sarah Manes As the Liver Cancers Program Director at Global Liver Institute, I’m proud to...
Driving Progress in Rare Liver Disease Patient Story Feature: From Patient to Pioneer: Frans Frielink’s Journey with Alpha-1 MZ When years of fatigue, inflammation, and unanswered...
From Patient to Pioneer: Frans Frielink’s Journey with Alpha-1 MZMy name is Frans Frielink, and I have over 40 years of experience in the semiconductor market in research and business. My background...
Smart Tools, Healthier Livers: How Digital Health Can Help You Take ControlWhether you know it or not, your liver plays a central role in your health. It has over 500 functions in the body,...
Budget Reconciliation Bill Passes with Steep Medicaid Cuts, Orphan Drug Exemption from Medicare Negotiation Congress passed H.R. 1 with the Vice President providing the tie-breaking vote in the...
Advancing Screening, Science & AdvocacyA Note from the Director, Dr. Sharon H. Jaycox Reflections on the American Diabetes Association (ADA) Scientific Sessions I recently had the privilege of...
Recent News
Congress Reconvenes in September to Advance Appropriations Bills, Looks Ahead to Possible Package of Health Policies GLI looks forward to hitting Capitol Hill to support liver health policy priorities, including access to care, medical nutrition, early screening and...
Driving Progress in Rare Liver Disease Patient Story Feature: Commemorating International PBC Awareness Day In recognition of International PBC Awareness Day on September 7, we are highlighting Catarra Simmons, an emerging patient advocate for PBC....
Patient Story Feature: Catarra Simmons' Journey with PBC and Meeting Another PBC Patient for the First Time I started itching in 2022. It kept me awake at night, and I scratched until my skin was raw to the touch. I would itch uncontrollably, especially when I got...
I’m Alive Because of a DCD Organ. The Truth Deserves to Be Heard.On February 13, 2024, I became one of the thousands of people whose lives have been saved by donation after circulatory death (DCD) transplantation. Only 3 in 1,000 people who register as organ donors...
Global Liver Institute Launches Inaugural Patient and Scientific Advisory Council(Washington, D.C., August 20, 2025) – Global Liver Institute (GLI), the premier patient-driven liver health nonprofit, has launched its inaugural Patient and Scientific Advisory Council...
