From Patient to Pioneer: Frans Frielink’s Journey with Alpha-1 MZ
Driving Progress in Rare Liver Disease – Pediatric and Rare Liver Diseases News
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Global Liver Institute
Pediatric & Rare Liver Diseases News
GLOBAL LIVER INSTITUTE
Pediatric & Rare Liver Diseases News
From Patient to Pioneer: Frans Frielink’s Journey with Alpha-1 MZ
My name is Frans Frielink, and I have over 40 years of experience in the semiconductor market in research and business. My background is deeply rooted in analytical thinking, problem-solving, and translating complex systems into practical solutions. However, in 2018, my health became the most difficult problem I had ever faced.
Smart Tools, Healthier Livers: How Digital Health Can Help You Take Control
Whether you know it or not, your liver plays a central role in your health. It has over 500 functions in the body, including filtering toxins from the blood and helping manage levels of sugar and cholesterol in your blood.
Budget Reconciliation Bill Passes with Steep Medicaid Cuts, Orphan Drug Exemption from Medicare Negotiation – Liver Health Policy Update
Congress passed H.R. 1 with the Vice President providing the tie-breaking vote in the Senate to pass the bill 51-50, the House passing the bill on July 3, and the President signing the bill into law on July 4.
Advancing Screening, Science & Advocacy – Fatty Liver Disease News
Global #FattyLiverDay was a Powerful Show of Global Collaboration and Commitment.
This year, over 120 partners from more than 60 countries and 29 endorsers helped raise awareness, host 85+ community events, share resources, and demonstrate why liver health matters to the world.
GLI Supports the Bipartisan Reintroduction of the Treat and Reduce Obesity Act
Global Liver Institute (GLI) applauds the reintroduction of the bipartisan Treat and Reduce Obesity Act (TROA) in the U.S. House of Representatives last Friday.
Treatment Strategies and Advancements in Testing – Liver Cancer News
Global Liver Institute brings you key updates on emerging treatment strategies and advocacy efforts from global leaders like the World Hepatitis Alliance. In this issue, we offer new resources, a short quiz to see if your liver is healthy, explore promising early detection methods in Liquid Biopsy and Navigating Advanced HCC, and emphasize the importance of routine liver scanning for individuals with type 2 diabetes.
Global Research and Patient Priorities – Pediatric and Rare Liver Diseases News
Kristin Hatcher, Director of GLI’s Pediatric and Rare Liver Disease Program, joined U.S. and global pharmaceutical leaders for a powerful discussion on gaps in drug development and the critical need to include lived patient experience in both rare and common diseases.
Culturally Relevant Tools to Increase Hepatitis B Screening in Asian American Communities
Infection with hepatitis B poses a serious risk to the health of many Americans – especially in certain groups with high risk, including Asian Americans and Asian-American immigrants. Research has found that, to support universal adult screening recommendations, culturally- and linguistically- appropriate educational tools can increase the rate of screening.
Global Liver Institute Leads Efforts in Urging FDA to Recognize Patient-Defined Progress in Drug Development
At the Global Liver Institute, we believe that it all starts with a patient because only they define what progress means to their lives. By elevating their lived experiences, we ensure that science, policy, and care move in the direction that matters most: toward earlier answers, more options, and a better standard of care.
TROA Reintroduced, Veterans Health Advances, Hep C Bill Introduced, and Senate Considers Medicaid Cuts – Liver Health Policy Update
The House passed H.R. 1, the One Big, Beautiful Bill Act, sending the budget reconciliation package to the Senate.
GLI Works With Congress to Protect Veterans’ Health
Global Liver Institute (GLI), in close coordination with congressional staff, has worked tirelessly to ensure that veterans diagnosed with NASH/MASH have no barriers to their care and treatment.