Today is International NASH Day, a time where healthcare experts and community members around the globe step up and raise awareness of the most common liver disease in the world – nonalcoholic fatty liver disease (NAFLD) – and it’s more severe form, nonalcoholic steatohepatitis (NASH).
Global Liver Institute
GLOBAL LIVER INSTITUTE
Global Liver Institute Frustrated by FDA GIDAC Committee Failure to Recognize Serious, Unmet Need of Liver Patients in Rejection of Obeticholic Acid for Pre-Cirrhotic Fibrosis Due to NASH
Despite acknowledging OCA met the endpoint established by the FDA of reducing fibrosis by at least one stage, GIDAC voted against approval for treatment for NASH.
ICER Midwest CEPAC Works to Keep Up with Well-Informed NASH Patient Advocates
On Friday, the Institute for Clinical and Economic Review (ICER) held a public hearing to review its draft assessment of Resmetirom and Obeticholic Acid (OCA) for Non-Alcoholic Steatohepatitis: Effectiveness and Value. While the evidence presented for both drugs was deemed effective in fibrosis regression, ICER inconsistently voted to show that there was only a net health benefit in favor of resmetirom, being superior to lifestyle management alone, and not in OCA.
Patient Groups Declare ICER Review of NASH Medication Causes More Uncertainty and Controversies Than It Resolves
Today, the Institute for Clinical and Economic Review (ICER) will hold a public hearing on its draft assessment of Resmetirom and Obeticholic Acid for Non-Alcoholic Steatohepatitis: Effectiveness and Value.
GLI’s Liver Action Network Supports Living Donor Day and Calls for Increased Awareness of Living Donation
The members of the Liver Action Network (LAN) pledge collective support for Living Donor Day to honor the donors, recipients, families and caregivers, and clinical teams that make the lifesaving gift of organ donation possible.
Global Liver Institute Applauds HRSA’s Announcement of OPTN Modernization Initiative and Contract Break Up as Critical to Achieve Health Equity
Global Liver Institute commends Health Resources and Services Administration (HRSA)’s recent announcement that it will break up the Organ Procurement and Transplantation Network (OPTN) monopoly.
Public Witness Testimony, Donna Cryer
GLI CEO Donna R. Cryer addresses the concerns of the liver disease community about the senseless rising incidence of liver disease and liver cancers when measures to prevent, diagnose, and treat liver disease and liver cancer are available.
New Report Indicates Urgent Global Need for Liver Disease Prevention & Treatment
As part of its Liver Health is Public Health initiative, Global Liver Institute’s (GLI) recent Global State of Liver Health report has exposed alarming trends in liver disease through compiled statistics and expert perspectives.
GLI’s Liver Action Network Emphasizes the Link between NASH and Obesity on World Obesity Day
As members of Global Liver Institute’s Liver Action Network (LAN), the undersigned organizations are proud to take part in World Obesity Day. We recognize the relationship between nonalcoholic fatty liver disease (NAFLD), its advanced form, nonalcoholic steatohepatitis (NASH), and obesity.
Obstetric and Neonatal Professionals Must Work More Closely with Pregnant People to Identify Liver Diseases Early
(Washington D.C., February 1, 2023) – Global Liver Institute (GLI) launches its third annual #RareAware campaign today to raise awareness of and build resources for liver health challenges to maternal and neonatal well-being through a series of webinars, storytimes, and social media outreach. Liver diseases such as (spell out) ICP and BA can complicate a pregnancy or endanger a newborn’s earliest days, in the worst cases threatening the lives of baby and mother alike.
Global Liver Institute Announces New Leadership of the Liver Action Network
In 2021, Global Liver Institute (GLI) launched the Liver Action Network (LAN) to better synchronize engagement across the liver advocacy community and to meet the needs of a rapidly growing cadre of liver health advocates. The LAN operates as a first-of-its-kind network that provides community member organizations a central structure for the formulation of collective health policy and programmatic solutions.
If We Do Not Prevent Liver Disease Now, the World Will Face Devastating Loss of Both Life and Financial Resources
Global Liver Institute (GLI), the premier patient-led liver health nonprofit operating globally, announces the launch of its Global State of Liver Health report as part of its Liver Health is Public Health (LHPH) initiative. Through compiled statistics and expert perspectives, the report paints a preliminary picture of the key issues in liver health worldwide as well as the unique challenges faced by communities in specific regions before providing recommendations for the future.