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Everylife Foundation Rare Across America

Rare Across America 2024 is the opportunity to meet with your Members of Congress at their in-district offices and educate them on the issues that are most important to the rare community by sharing your story.


All Senate meetings will be scheduled virtually and House meetings will be in person at your Member’s in-state, in-district office. Rare Disease Legislative Advocates (RDLA) will schedule meetings for you and help you to prepare. No prior advocacy experience is necessary.


Meetings with Members of Congress will take place between August 5th and August 16th. We will be offering training webinars to help advocates prepare for their meetings.

  • July 16th, 12pm ET: General Training Webinar – Register Here
  • July 24th, 12pm ET: Team Coordinator Training Webinar (A link to attend this training will be sent to all confirmed team coordinators).
  • July 25th, 12pm ET: Share Your Story with Policymakers Webinar – Register Here


Aug 05 - 16 2024


All Day

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