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#RareAware Roundtable: Parents and Partners

In this roundtable, our host, Donna Cryer, is joined by guest Kara Ayik, the mom of Evren, a rare disease patient who has inspired Kara to write a book that helps other families and kids understand how special they are. Also joining us is Alex Summers, a partner and caregiver of Cristina Summers, a patient who experienced preeclampsia; and Jordan Sarbaugh, the co-founder and VP at BARE Inc, to share their experiences and insights into the world of rare liver diseases.

Register here


Feb 13 2023


12:00 pm