Facing a medication change can be confusing and stressful, but you don’t have to navigate it alone. Our “When Treatment is No Longer Available” FAQ sheet is here to guide you through the process, answering the questions patients ask most: Why was this medication withdrawn? What should I do next? Who can I turn to for support?

Developed with input from Dr. Julio Guitterez, an expert transplant hepatologist at Scripps Health, expertise from primary biliary cholangitis (PBC) patient advocacy organizations, and with the support of Intercept Pharmaceuticals, this resource uses PBC as a case study to provide real-life examples. The information shared also applies broadly to many situations where rare disease medications are discontinued.