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CAMPAIGN OVERVIEW

Rare Liver Diseases Month is an all-inclusive, collaborative campaign that aims to promote awareness and education about a diverse range of rare liver diseases through discussions on health policies, education, and advocacy. Through the #RareAware campaign, GLI strives to streamline the rare patient experience by addressing barriers and challenges to patient access and care from the perspective of patients, families, and providers, even when these issues lie beyond the patients’ direct control.

Every patient deserves an answer sooner. Under the theme Early Detection Drives Direction, this year’s #RareAware campaign is spotlighting overlooked signs, symptoms, and living experiences so rare liver diseases are recognized sooner. Together, we are empowering patients, caregivers, and allies to talk about their symptoms loudly, ask the hard questions, and bring rare liver diseases into conversations where early recognition can begin.  

Goals

  • Increased Adoption of Noninvasive Diagnostics: Wider use of noninvasive diagnostic tools, leading to earlier detection and intervention
  • Improved Patient Outcomes: Reduced progression to severe liver disease and improved management of MASLD/MASH
  • Cost Savings: Decreased healthcare costs by minimizing the need for invasive procedures and advanced treatments
  • Global Impact: Improved liver health in regions with high rates of cardiometabolic risk factors, obesity, and limited access to care

#RareAware Campaign Key Messages:

There are over 100 rare liver diseases, but many of them are unknown. #RareAware
Less than 5% of rare liver diseases have approved treatments, highlighting the need for research and advocacy. #RareAware
Rare diseases affect millions globally. Collectively, up to 300 million people around the world live with a rare condition. #RareAwareEducation is empowerment! Knowing about rare liver diseases helps families make informed decisions and advocate for themselves. #RareAware
Your voice makes a difference. Sharing your story can help raise awareness and change the way rare liver diseases are understood. #RareAware

Check out our previous campaign successes:

  • #RareAware 2026: Early Detection Drives Direction
  • #RareAware 2025: Rare & Rural 
  • #RareAware 2024: Transitions in Care
  • #RareAware 2023: Pregnancy & Parenthood
Learn more about Pediatric and Rare liver diseases.
For more information, please contact pedsrare@globalliver.org