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Pediatric and Rare Liver Diseases Council

Born from the urgent need to give patients a voice in liver health, the Pediatric and Rare Liver Diseases Council brings together non-profit, for-profit, government, and patient representatives who are committed to addressing the challenges and impact of pediatric and rare liver diseases on individuals, communities, and organizations around the world.

View our Pediatric and Rare Liver Diseases Council members:

View our Pediatric & Rare Liver Diseases Council individual members:

Ahmad Anouti, MD, BA Patient Rep and UT Southwestern
Marco Carbone, Prof, University of Milano-Bicocca
Pietro Invernizzi, MD, University of Milano-Bicocca
Ben Hainsworth, EASL
Dave Jones, Prof, Newcastle University
Carlo Dionisi Vici, MD, Bambino Gesù Children’s Hospital
Rohit Kohli, MBBS, MS, MD, Children’s Hospital Los Angeles
Kathleen Teixeira, AGA (American Gastroenterological Association)
Cynthia Buness, PSC Caregiver Rep
Taylor Rhoades, BA Caregiver Rep