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  • Understanding Liver Diseases
  • PROGRAMS & INITIATIVES
    • Advanced Advocacy Academy
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  • ADVOCACY & POLICY
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I’m Alive Because of a DCD Organ. The Truth Deserves to Be Heard.

by Ethan Schneier | Aug 21, 2025 | Patient Stories, Transplant

Sophie Hansen A3 Alum 2x Liver Transplant Recipient Hepatology and Pediatric Organ Transplant Researcher SPLIT, AASLD, F4LC, DonorConnect On February 13, 2024, I became one of the thousands of people whose lives have been saved by donation after circulatory death...

From Patient to Pioneer: Frans Frielink’s Journey with Alpha-1 MZ

by Ethan Schneier | Aug 5, 2025 | Patient Stories, Rare Liver Disease

My name is Frans Frielink, and I have over 40 years of experience in the semiconductor market in research and business. My background is deeply rooted in analytical thinking, problem-solving, and translating complex systems into practical solutions. However, in 2018,...

Catarra Simmons’ Journey with PBC and Meeting Another PBC Patient for the First Time 

by Ethan Schneier | Feb 20, 2025 | Patient Stories, Rare Liver Disease

I started itching in 2022. It kept me awake at night, and I scratched until my skin was raw to the touch. I would itch uncontrollably, especially when I got hot, and I didn’t understand what was happening to me. Over time, my skin tone grew darker, and the whites of...
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