by Ethan Schneier | Feb 1, 2026 | Press Release, Rare Liver Disease
Global Liver Institute’s Fifth #RareAware Campaign Puts Early Detection at the Center of Care (Washington, DC, February 1, 2026) – Rare disease patients often have to make 17 medical visits before a diagnosis. Under the theme of Early Detection Drives Direction,...
by Ethan Schneier | Aug 5, 2025 | Patient Stories, Rare Liver Disease
My name is Frans Frielink, and I have over 40 years of experience in the semiconductor market in research and business. My background is deeply rooted in analytical thinking, problem-solving, and translating complex systems into practical solutions. However, in 2018,...
by Ethan Schneier | Feb 20, 2025 | Patient Stories, Rare Liver Disease
I started itching in 2022. It kept me awake at night, and I scratched until my skin was raw to the touch. I would itch uncontrollably, especially when I got hot, and I didn’t understand what was happening to me. Over time, my skin tone grew darker, and the whites of...
