RARE Disease Week

This free, multi-day event brings together rare disease advocates from across the country to make their voices heard with their Members of Congress. #RareDC2027

Save the Date: March 2 – 4, 2027

Rare Disease Week Registration will open on January 6, 2027.

This free multi-day event, hosted by the RARE Advocates, a program of the RARE Foundation, brings together rare disease advocates from across the country to make their voices heard with their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate directly for policy change with their Members of Congress.
#RareDC2027