• RARE Disease Week

    GLI Event

    This free, multi-day event brings together rare disease advocates from across the country to make their voices heard with their Members of Congress. #RareDC2027 Save the Date: March 2 – 4, 2027 Rare Disease Week Registration will open on January 6, 2027. This free multi-day event, hosted by the RARE Advocates, a program of the RARE Foundation, […]