Global Liver Institute, Sibley/Johns Hopkins Medicine and Astellas Among Transplant Innovators Featured at White House Organ Summit

Washington, DC — On Monday, June 13, in recognition of the severe shortage of solid organs available for life-saving transplantation in the United States, The White House will convene and host an Organ Summit as another essential step toward increasing access to organ transplants and reducing the organ waiting list. The event will be webcast live from 10:30am – 12:30pm EDT at Social media users can follow the Summit conversation via the hashtag #OrganDonor.

Among the featured initiatives to address this issue is a collaboration led by the Global Liver Institute (GLI), in collaboration with Johns Hopkins Medicine, Sibley Innovation Hub, and Astellas.  These partners are committed to developing a model Patient-Centered Medical Home and Survivorship Program for Transplant Recipients that improves the long-term outcomes for solid organ transplant recipients by reducing the number of re-transplantations through care coordination and shared decision-making tools informed by predictive analytics and human-centered design principles. A pilot will begin in August 2016 with results made publicly available by Spring 2017. Representatives of the initiative will be at the White House Organ Summit and available to the press.

GLI president and CEO, a 21-year liver transplant survivor, remarks, “The gap between the almost 15,000 people waiting for a liver transplant and the 2507 liver transplant surgeries[1] that have been done so far this year means that people will die while waiting. It is just that simple and just that urgent to solve the organ donation crisis through increased innovation and collaboration.  We are so appreciative that the President and the Administration are shining a light on this issue and honored to be working with such incredible partners to contribute solutions.”

As the experts in clinical care pre-and-post transplant and the home of the Innovation Hub, Sibley Johns Hopkins Medicine is the lynchpin of the project, ensuring that the model developed is not only innovative, but practical, and workable in Academic and Community Care settings. Nick Dawson, Executive Director of the Johns Hopkins Sibley Innovation Hub stated, “This is a great opportunity to demonstrate that human-centered design —engaging patients, clinicians, nonprofit and corporate partners as peers —results in programs which have the opportunity to positively affect patient outcomes and solve national problems. Kudos to the Administration for convening on this issue and we are honored to have our commitment featured.”

See Dr. Andrew Cameron, GLI Board Member and Surgical Director, Liver Transplant at Johns Hopkins Medicine Discuss Organ Donation:

[1] UNOS Data as of June 3, 2016

About The Global Liver Institute

The Global Liver Institute is a 501(c)(3) tax-exempt not-for-profit organization, headquartered in Washington, D.C., United States. Our vision is for liver health to take its place on the global public health agenda commensurate with its prevalence and impact. Our mission is to improve the impact of the liver community by promoting innovation, collaboration, and scaling optimal approaches to eradicating liver diseases.

For more information, visit, Follow us on Twitter or Facebook.

About Astellas

Astellas is a pharmaceutical company dedicated to improving the health of people around the world through the provision of innovative and reliable pharmaceutical products. For more information on Astellas, please visit our website at

You can also follow us on TwitterFacebook, or LinkedIn.

About Sibley Memorial Hospital/Johns Hopkins Medicine

Sibley Memorial Hospital, a member of Johns Hopkins Medicine, in Northwest Washington, D.C., has a distinguished history of serving the community since its founding in 1890. As a not-for-profit, full-service, 318-bed community hospital, Sibley offers medical, surgical, intensive care, obstetric, oncology, orthopedic and skilled nursing inpatient services and a 24-hour Emergency Department. Sibley’s campus is also home to Grand Oaks, an assisted living residence, a medical building with physician offices as well as ambulatory surgery and imaging centers. For more information, visit

Media Contacts:

Global Liver Institute
Donna Cryer
(202) 603-3493

Sibley Innovation Hub/Johns Hopkins Medicine
Nick Dawson
(804) 767-5886

Tyler Marciniak
(847) 736-7145