Rare Liver Disease Month is an all-inclusive, collaborative campaign that aims to promote awareness and educate the general public about a diverse range of rare liver diseases through insightful discussions on health policies, education, and advocacy. Occurring annually in February, Rare Liver Disease Month elevates the voices within the rare liver disease community and equips rare advocates with the tools to make a positive difference in their communities. 

As a result of a lack of attention paid to rare liver diseases in public health discussions and discussions between medical providers, patients often suffer from delayed diagnosis, inadequate support, and inhibited access to treatment for these diseases. Thus, GLI aims to streamline the rare patient experience and mitigate the presence of barriers and challenges to patient access and care from a patient, family, provider perspective, addressing issues not directly under the control of the patients. 

As one of the very few rare liver disease advocacy initiatives, this program involves all age groups (including underrepresented children and adolescents), promotes health equity, and facilitates communication between industry, policymakers, clinicians, researchers, and regulators to improve care for patients. This month will focus on liver diseases of pregnancy, pregnancy in rare liver diseases, and parenthood. As part of this ambitious campaign, we are introducing weekly themes, accompanied by programs that highlight the perspectives of pregnant people and parents about the realities of pregnancy and parenthood, equity in medicine for parents and pregnant people, care for mothers and parents, and policy & advocacy in healthcare.