Thanks to the dedication of researchers and innovators, patients with several rare liver diseases can find hope in the promise of new treatments on the horizon – great news on the heels of Rare Liver Diseases Month.
Global Liver Institute
GLOBAL LIVER INSTITUTE
Patient Advocacy at Work
February, the rare shortest month of the year, also marks the month for rare liver diseases.
Obstetric and Neonatal Professionals Must Work More Closely with Pregnant People to Identify Liver Diseases Early
(Washington D.C., February 1, 2023) – Global Liver Institute (GLI) launches its third annual #RareAware campaign today to raise awareness of and build resources for liver health challenges to maternal and neonatal well-being through a series of webinars, storytimes, and social media outreach. Liver diseases such as (spell out) ICP and BA can complicate a pregnancy or endanger a newborn’s earliest days, in the worst cases threatening the lives of baby and mother alike.
Not So Rare: The Paradox of Rare Diseases
Welcome to the very first edition of Pediatric & Rare Liver Diseases News! As we expand our offerings for and about this community, Global Liver Institute is also committed to keeping you informed about what is happening with pediatric and rare liver diseases.
This edition is the first monthly community-specific newsletter within our new structure. Check out upcoming events in the pediatric and rare liver disease field, a patient’s perspective, exciting news, and more below.
Global Liver Institute Holds Primary Biliary Cholangitis (PBC) Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting
On February 4, 2022 10 AM ET, Global Liver Institute will lead an Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD) on Primary Biliary Cholangitis (PBC). This online event is open to the public with registration required.
Support PBC Research: What to do after #RAREDISEASEDAY
Do you have PBC? Rare Disease Day, celebrated across social media and IRL on the last day of the shortest month of the year, is a growing global movement, shining a light on the thousands of conditions cumulatively affecting tens of millions of people.