Physicians from the Children’s Hospital Los Angeles have created a web-based app to predict whether children in acute liver failure will need a liver transplant.
Global Liver Institute
GLOBAL LIVER INSTITUTE
Updated Patient Registry, Drug Development Progress, & More!
This month, significant strides have been made in addressing rare liver disease care. Updates to patient registries, novel therapeutic options, and strategies for expediting prior authorizations in rare diseases are highlighted below.
Addressing Unmet Needs in Peds and Rare Liver Diseases
Concerted efforts are driving positive change in the pediatric and rare liver disease community! Read on for details:
Technology at Work
Read along for some updates about cutting-edge technology in rare liver disease that should improve prompt diagnosis, ongoing feedback, and effective interventions.
Noteworthy Progress in Patient Advocacy & Clinical Trials
Actively supporting advocacy efforts and engaging in novel clinical trials can provide patients with a sense of hope for potential therapies and assurance in the management of their condition.
Efforts for Improved Treatment and Diagnosis of Rare Liver Diseases
In this month’s edition, we feature the latest initiatives that GLI has taken part in to advocate for policy changes and highlight new innovations in the rare liver disease field to allow for better research opportunities and improved patient outcomes.
Working Together towards Change in Rare Liver Diseases
In this month’s edition, we feature the latest initiatives that GLI has taken part in to advocate for policy changes and highlight new innovations in the rare liver disease field to allow for better research opportunities and improved patient outcomes.
Pushing Treatments Forward in Rare Liver Diseases
In the rare liver disease space, education for healthcare providers and researchers is just as important as general awareness, education for patients, and patient advocacy.
Advancements in Rare Liver Disease Treatment
Thanks to the dedication of researchers and innovators, patients with several rare liver diseases can find hope in the promise of new treatments on the horizon – great news on the heels of Rare Liver Diseases Month.
Patient Advocacy at Work
February, the rare shortest month of the year, also marks the month for rare liver diseases.
Obstetric and Neonatal Professionals Must Work More Closely with Pregnant People to Identify Liver Diseases Early
(Washington D.C., February 1, 2023) – Global Liver Institute (GLI) launches its third annual #RareAware campaign today to raise awareness of and build resources for liver health challenges to maternal and neonatal well-being through a series of webinars, storytimes, and social media outreach. Liver diseases such as (spell out) ICP and BA can complicate a pregnancy or endanger a newborn’s earliest days, in the worst cases threatening the lives of baby and mother alike.
Not So Rare: The Paradox of Rare Diseases
Welcome to the very first edition of Pediatric & Rare Liver Diseases News! As we expand our offerings for and about this community, Global Liver Institute is also committed to keeping you informed about what is happening with pediatric and rare liver diseases.
This edition is the first monthly community-specific newsletter within our new structure. Check out upcoming events in the pediatric and rare liver disease field, a patient’s perspective, exciting news, and more below.