Events

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February 2025
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World Cholangiocarcinoma Day

On February 15, 2024, we want the world to come together for #WorldCCADay World CCA Day is an international effort to raise much-needed awareness of CCA, a devastating cancer that occurs in the bile ducts in or outside the liver. This poorly understood and under researched disease is increasing in incidence globally – we believe collaboration is the way forward. CCA causes a number of vague symptoms, making it very difficult to diagnose, and in some cases leading people to be misdiagnosed with other less serious conditions before receiving the correct diagnosis. After a long and difficult path to diagnosis, patients and their loved ones face the unknown – a type of cancer they have likely never heard of and know nothing about; in many cases the cancer is advanced, with a poor prognosis; and with limited treatment options available, they don’t know what comes next. This year, we are calling for a smoother journey to diagnosis for people impacted by cholangiocarcinoma – timely, decisive and supported. It’s time to be #BeClearOnCCA. We are asking healthcare professionals to take action to improve time to diagnosis: Clarify – Get to know the signs and symptoms of CCA ‍Listen – Establish whether […]
15 Feb
All Day
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Elegir un seguro de salud y manejar las facturas medicas

Inscripcion al seminario web: Elegir un seguro de salud y manejar las facturas medicas 19 de Febrero, 2025 10:00am PT / 12:00pm CT /1:00pm ET Duración: 90 minutos Este seminario web presentará consejos clave para navegar por el seguro de salud, incluyendo consideraciones a tener en cuenta al comparar planes y cómo minimizar los gastos de bolsillo. Aprenda pasos prácticos para gestionar las facturas médicas, incluyendo cómo negociar sus facturas y establecer planes de pago. Inscripción Inscríbase en el seminario web directamente a continuación. Los participantes que necesiten adaptaciones por discapacidad deben enviar un correo electrónico a sw@triagecancer.org. ________________________ Join Triage Cancer for a FREE webinar on February 19 to learn how to choose the right health insurance and confidently manage medical bills! Date: February 19, 2025 Time: 10 am PT | 12 pm CT | 1 pm ET Learn how to: ✔️ Compare health insurance plans ✔️ Minimize out-of-pocket costs ✔️ Manage and negotiate medical bills 📌 Register here: TriageHealth.org/Webinars Registration is open until the day of the event—don’t wait, sign up today!
19 Feb
1:00 pm - 2:30 pm
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Everylife Foundations Week in Rare, Washington, D.C.

Rare Disease Week on Capitol Hill 2025 Save the Date: February 24-26, 2025 #RareDC2025 This multi-day event, hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), brings together rare disease advocates from across the country to make their voices heard by their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for policy changes directly to their Members of Congress.
24 - 28 Feb
All Day
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Managing the Cost of Your Cancer Care at Memorial Sloan Kettering (MSK)

The Patient Financial Services Department is hosting an information session about health insurance coverage at MSK. During the talk, we’ll give you information to help you: – Understand your health insurance – Manage the cost of your care – Learn about the financial support and resources available at MSK This program is open to MSK patients and their caregivers.
26 Feb
8:00 am - 9:00 am
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CHOC & UCI Rare Disease Symposium & Family Conference 2025, Irvine, CA

CHOC and UCI are excited to present the 4th Annual Rare Disease Symposium and Family Conference, uniting advocates, researchers, clinicians, students, and families. This event serves as a platform for sharing knowledge, research advancements, and personal stories related to rare diseases. This year’s conference will focus on the latest innovations in the diagnosis and treatment of rare diseases across various specialties. Attendees will experience dynamic presentations by leading experts, as well as personal stories from families affected by rare conditions, promoting a stronger sense of community and understanding. We look forward to seeing you at the following 2025 events. All times are listed in Pacific Standard Time. Wednesday, February 26, 2025 | 8:00 AM – 9:05 AM (PST): Rare Disease Grand Rounds (Virtual, Speaker: Cary O. Harding M.D.) Friday, February 28, 2025 | 8:00 AM- 5:00 PM (PST): Rare Diseases Scientific, Patient Presentations and Poster Session (In-Person at Beckman Center Irvine, CA 92617) Location: Beckman Center, UCI 100 Academy Way Irvine, CA 92617
26 Feb
8:00 am - 5:00 pm
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CHOC & UCI Rare Disease Symposium & Family Conference 2025, Irvine, CA

CHOC and UCI are excited to present the 4th Annual Rare Disease Symposium and Family Conference, uniting advocates, researchers, clinicians, students, and families. This event serves as a platform for sharing knowledge, research advancements, and personal stories related to rare diseases. This year’s conference will focus on the latest innovations in the diagnosis and treatment of rare diseases across various specialties. Attendees will experience dynamic presentations by leading experts, as well as personal stories from families affected by rare conditions, promoting a stronger sense of community and understanding. We look forward to seeing you at the following 2025 events. All times are listed in Pacific Standard Time. Wednesday, February 26, 2025 | 8:00 AM – 9:05 AM (PST): Rare Disease Grand Rounds (Virtual, Speaker: Cary O. Harding M.D.) Friday, February 28, 2025 | 8:00 AM- 5:00 PM (PST): Rare Diseases Scientific, Patient Presentations and Poster Session (In-Person at Beckman Center Irvine, CA 92617) Location: Beckman Center, UCI 100 Academy Way Irvine, CA 92617
26 Feb
8:00 am - 9:05 am
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FDA-NIH Rare Disease Day 2025, Washington, D.C.

FDA-NIH Rare Disease Day 2025 will be held at NIH Main Campus (Natcher Conference Center) on Thursday, Feb. 27, 2025 and Friday Feb. 28, 2025, from 10 a.m. to 4 p.m. EST. The event will feature panel discussions, rare diseases stories, in-person exhibitors and scientific posters, and an art exhibition. The event is free and open to the public. If you are interested in presenting a scientific poster or being an exhibitor, please visit the registration website for more information.
27 - 28 Feb
10:00 am - 4:00 pm
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CHOC & UCI Rare Disease Symposium & Family Conference 2025, Irvine, CA

CHOC and UCI are excited to present the 4th Annual Rare Disease Symposium and Family Conference, uniting advocates, researchers, clinicians, students, and families. This event serves as a platform for sharing knowledge, research advancements, and personal stories related to rare diseases. This year’s conference will focus on the latest innovations in the diagnosis and treatment of rare diseases across various specialties. Attendees will experience dynamic presentations by leading experts, as well as personal stories from families affected by rare conditions, promoting a stronger sense of community and understanding. We look forward to seeing you at the following 2025 events. All times are listed in Pacific Standard Time. Wednesday, February 26, 2025 | 8:00 AM – 9:05 AM (PST): Rare Disease Grand Rounds (Virtual, Speaker: Cary O. Harding M.D.) Friday, February 28, 2025 | 8:00 AM- 5:00 PM (PST): Rare Diseases Scientific, Patient Presentations and Poster Session (In-Person at Beckman Center Irvine, CA 92617) Location: Beckman Center, UCI 100 Academy Way Irvine, CA 92617
28 Feb
8:00 am - 5:00 pm
March 2025
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