RARE Health Equity Forum

About the RARE Health Equity Forum

The RARE Health Equity Forum is the first one-of-a-kind event focused on the intersection of rare disease and health equity with an agenda built around creating systemic and organizational change. The conference was developed to better understand the persistent gaps that exist in the rare disease community for underrepresented and/or marginalized patient populations, including those who are still seeking a diagnosis or are unaffiliated with a disease-specific foundation.

In its fourth year, the theme of the event will be “Together in Equity, Driving Change”. Through plenary sessions, networking and interactive table talks, the event empowers attendees with actionable tools and strategic insights to advocate for a more inclusive rare disease community.