Rare Liver Diseases Month
In addition to the physical, psychosocial, and financial challenges associated with any liver disease, a rare liver disease patient can face additional burdens such as a lengthy, often invasive diagnosis and, if even available, costly treatments. The need to travel a formidable distance to see a hepatologist in their specialty area may introduce an additional financial burden. Thus, the #RareAware campaign draws attention and resources to remediate these significant problems. It involved all age groups, pushed for health equity, and facilitated communication between patients and the healthcare industry to improve care.