At GLI, we know that Liver Health is Public Health – which means that prevention is perhaps our greatest tool to keep livers around the world healthy. These past few months have been busy – and they have been full of international alignment around the urgency of investing in key preventive measures.
The broader community is convening to eliminate hepatitis C – a critical achievement upstream of liver cancers needed to achieve the Cancer Moonshot. The White House has aligned the community to focus on nutrition-related issues to address metabolic conditions like obesity – a major driver of NAFLD and NASH, which are also upstream of liver cancer. We are thrilled to see these national and international conversations align with our consistent message about the importance of the liver and the necessity of systemic advancement of liver health. Now is an exciting time.
In our ongoing quest to clarify misconceptions about liver disease and emphasize the critical role of the patient voice, we’ve been all over – from Bloomberg to Instagram Live to ABC7 to stages across the globe in front of researchers, advanced practitioners, clinicians, and more. Everyone can play a role in achieving equitable, widespread liver health – so we’re doing our part to make sure everyone knows about the liver.
Leadership in Liver Health Luncheon
On October 17, GLI honored two illustrious leaders in health at our second annual Leadership in Liver Health Luncheon. We recognized Dr. Michelle McMurry-Heath with the Global Excellence in Health Equity Award and Dr. Leana Wen with the Global Excellence in Health Communications Award.
GLI around the World
Paris NASH Meeting
As global leaders strategized to combat the growing prevalence of NASH, GLI’s VP of Liver Health Programs (& resident NASH expert) Jeff McIntyre provided the sole patient advocacy perspective at the 8th Paris NASH Meeting, on September 8. We can’t wait to see the progress at the next Paris NASH Meeting!
Clinical Development and Operations Summit
In September, GLI participated in the 1st Clinical Development and Operations Summit in Prague by Boehringer Ingelheim. Our VP of Liver Health Programs, Jeff McIntyre had the chance to discuss big ideas in clinical trials with others in the patient community.
World Patients Conference
Giacomo Donnini, GLI’s Liver Health is Public Health program director, represented GLI and the voices of liver health patients at the World Patient Alliance’s 1st global conference in Rome, Italy.
New in 2022, we’re premiering a 3-part cooking show with Chef Daniel Thomas. Follow along the liver-healthy recipes on YouTube today!
Created in collaboration with Blue Faery and Eisai Inc., the One Liver to Love campaign aims to raise awareness about liver cancer and the importance of adopting and maintaining healthy lifestyle choices to support liver health. By providing information, educational resources, support services and a sense of community for anyone impacted by liver cancer. For more information about the initiative, tips on navigating and living with liver cancer, as well as advocacy and support group information for patients and caregivers.
Baseball legend Bernie Williams goes to bat for the One Liver to Love initiative to help people living with liver cancer feel seen and supported in their experiences.
Policy & Advocacy
Advanced Advocacy Academy (A3)
A3 Caregiving and Well-Being Summit
Caregivers play an important role in a patient’s journey, and that can come with a significant physical and emotional toll. Learn about the intricacies of being a caregiver, ways to promote your own well-being, and other resources through this virtual summit hosted by GLI.
A3 Payer Summit
Insurance coverage, claims, and payment structures define an important portion of any patient’s experience in the U.S. These topics can sometimes fall to the wayside in conversations about liver health. Learn more from featured patient speakers and experts from the health insurance field, including Dr. Alex Oshmyansky, Founder & CEO of the Mark Cuban Cost Plus Drug Company.
6th Annual A3 Symposium
Congratulations to the Class of 2022 A3 Graduates! We delved into topics like digital health, advanced social media use and clinical trials and heard from speakers, including Congresswoman Sheila Jackson Lee, Francis Collins, Acting Science Advisor to the President, Norah Terrault, MD, President-Elect at AASLD, and many more before preparing advocacy plans together. We are so excited to see what our A3 advocates do next!
Updates from the Liver Action Network (LAN)
On July 20th, the LAN submitted proclamation’s to all 50 states urging governors to formally recognize World Hepatitis Day by committing to instituting free hepatitis testing for all state employees. Initiating more testing aligns seamlessly with the CDC’s Viral Hepatitis National Strategic Plan: A Roadmap to Elimination 2021-2025, as the US has experienced a startling increase in hepatitis A, B, and C cases over the last decade.
Pediatric & Rare Liver Diseases
Global Genes Patient Advocacy Summit in San Diego
The Pediatric and Rare team attended the 2022 Rare Patient Advocacy Summit hosted by Global Genes in San Diego. GLI was pleased to engage with patients, caregivers, advocates, health professionals, researchers, partners, and allies at the Summit. We were also able to share our findings on the PBC patient experience with a poster presentation!
International NASH Day
Under the leadership of GLI, #NASHday 2022 was celebrated on June 9, attracting over 70 partners and participants from more than 70 countries, receiving endorsements from 22
international societies, and successfully launching events, liver health screenings, briefings, media outreach, and social media campaigns worldwide. Now entering its sixth year, we invite you to step up for patients, step up for early detection, step up for advocacy, #StepUpforNASH. Register for #NASHday 2023!
INASL & ICON-D Launches Survey as First Step Towards NAFLD Action Plan
In India, the overall prevalence of NAFLD in the general population is close to 40 percent and even higher in other areas. On the occasion of International NASH Day, the Indian National Association for the Study of Liver (INASL)- NAFLD Taskforce and Indian Consortium on NAFLD (ICON-D) announced the launch of an Action Plan for the prevention and control of NAFLD in India. In August, they formally launched a survey as the first step towards formulating this action plan. View the survey here.
Upcoming Partner Events
GLI will be at The Liver Meeting!
Swing by to say hello at booth #237 or email firstname.lastname@example.org to set up a meeting with us.
Attend a GLI-led session at TLM:
- Nov. 4 at 10AM – Patient Community Conversation: Advanced Advocacy & GLI’s Liver Action Network
- Nov. 5 at 9AM – Patient Keynote Address – Liver Health Equity: Overcoming Stigma, Access and Policy Barriers
- Nov. 5 at 1PM – Meet the Experts dX8: Using Patient Advocacy to Advance Research in Chronic Liver Diseases
- Nov. 6 at 4PM – NAFLD Nomenclature Consensus Process Update
- Nov. 7 at 9AM – State-of-the-Art Lecture: Hepatocellular Carcinoma & NAFLD
November 9-11, 2022: 2022 Global Genes Rare Health Equity Summit Partners in Action
December 1, 2022: First Annual Primary Care NAFLD & NASH Summit 2022