Global Liver Institute
Pediatric & Rare Liver News
GLOBAL LIVER INSTITUTE
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Global Research and Patient Priorities – Pediatric and Rare Liver Diseases News
Kristin Hatcher, Director of GLI’s Pediatric and Rare Liver Disease Program, joined U.S. and global pharmaceutical leaders for a powerful discussion on gaps in drug development and the critical need to include lived patient experience in both rare and common diseases.
First Ever Rare Liver Disease Patient Cured with Personalized Gene Therapy Treatment – Pediatric and Rare Liver Diseases News
Kristin Hatcher, Director of our Pediatric and Rare Liver Diseases Program, joined global leaders and the GLI team at the EASL Congress this May to elevate the conversation around rare liver diseases.
Big Wins for Rare Liver Disease: New Codes, Drug Approvals, and Global Advocacy – Pediatric and Rare Liver Diseases News
The introduction of new, dedicated ICD-10 diagnosis codes for Fontan-associated conditions in the U.S. Centers for Medicare & Medicaid Services (CMS) FY 2026 IPPS Proposed Rule marks a significant step forward for patients who have undergone the Fontan procedure.
MiKayla Chapman’s Experience with the Rare Science Fairs – Pediatric and Rare Liver Diseases News
Growing up in rural Mississippi, MiKayla believed that opportunities in science were reserved for people from well-connected backgrounds.
How to Stay Engaged Beyond Rare Liver Diseases Month – Pediatric and Rare Liver Diseases News
February is Rare Liver Diseases Month! This year, our campaign is shining a spotlight on Rare and Rural.
It’s Rare Liver Diseases Month! – Pediatric & Rare Liver Diseases News
February is Rare Liver Diseases Month! This year, our campaign is shining a spotlight on Rare and Rural.