Global Liver Institute
Pediatric & Rare Liver News
GLOBAL LIVER INSTITUTE
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Innovation Sparks New Ideas at NORD’s Breakthrough Summit – Pediatric & Rare Liver Diseases News
Kristin Hatcher spent three days in Washington, D.C., at the NORD Breakthrough Summit to discuss equitable access to innovation.
2025 ICD-10 Coding will include code for cholestatic pruritus – Pediatric & Rare Liver Diseases News
Ipsen has achieved progress in the fight against cholestatic diseases, marking two important victories for patients.
Let’s Ensure Access to Treatment for PBC Patients – Pediatric & Rare Liver Diseases News
With advancements in second-line treatments for PBC in 2024, both current and new treatment options must remain available, so that every patient can choose the treatment that best meets their needs.
FDA’s New Rare Disease Innovation Hub may accelerate rare liver disease treatment – Pediatric & Rare Liver Diseases News
Ipsen Pharmaceuticals has just shared exciting news for rare liver disease patients with cholestasis.
New this month: Copayment assistance for certain genetic/metabolic diseases and a second-line PBC therapy! – Pediatric & Rare Liver Diseases News
We are honored to have had the opportunity to represent the rare liver diseases community at the Alpha-1 Foundation National Conference in Miami, Florida. The weekend was filled with transformative research and thought-provoking conversations.
Biomarker identified for infants with alpha-1 antitrypsin deficiency – Pediatric & Rare Liver Diseases News
The GLI Pediatric and Rare Liver Diseases team was thrilled to attend the BARE Symposium on May 10-11, 2024.