The introduction of new, dedicated ICD-10 diagnosis codes for Fontan-associated conditions in the U.S. Centers for Medicare & Medicaid Services (CMS) FY 2026 IPPS Proposed Rule marks a significant step forward for patients who have undergone the Fontan procedure.

Growing up in rural Mississippi, MiKayla believed that opportunities in science were reserved for people from well-connected backgrounds.

February is Rare Liver Diseases Month! This year, our campaign is shining a spotlight on Rare and Rural.

February is Rare Liver Diseases Month! This year, our campaign is shining a spotlight on Rare and Rural.

As we conclude this year, the Pediatric and Rare Liver Diseases team is reflecting on the incredible progress made by our council and patient organizations in 2024.

Kristin Hatcher spent three days in Washington, D.C., at the NORD Breakthrough Summit to discuss equitable access to innovation.