Global Liver Institute

News

GLOBAL LIVER INSTITUTE

News
Not So Rare: The Paradox of Rare Diseases

Not So Rare: The Paradox of Rare Diseases

Welcome to the very first edition of Pediatric & Rare Liver Diseases News! As we expand our offerings for and about this community, Global Liver Institute is also committed to keeping you informed about what is happening with pediatric and rare liver diseases.

This edition is the first monthly community-specific newsletter within our new structure. Check out upcoming events in the pediatric and rare liver disease field, a patient’s perspective, exciting news, and more below.

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Patient Story Feature: A normal day in my life with PBC by Bob Tyler

Patient Story Feature: A normal day in my life with PBC by Bob Tyler

If you’ve ever seen the movie Groundhog Day, that’s probably the best example I can give about my experience with PBC. I know each and every day what my day will be like. Waking up is tedious due to the joints just aching because of no movement during the night. Feeling totally “unrested” even with 6 to 7 hours of sleep. Slowly making my way down…

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Global Liver Institute Launches Its Liver Health Is Public Health Initiative

Global Liver Institute Launches Its Liver Health Is Public Health Initiative

(Washington, D.C., March 30, 2022) – Global Liver Institute (GLI), a patient-led liver health nonprofit operating globally, today announced the launch of its global Liver Health is Public Health (LHPH) initiative with a special feature in the 2022 Your Liver supplement in the Guardian. Liver conditions continue to be misunderstood, mischaracterized, and stigmatized, resulting in under-diagnosis, under-treatment, and unnecessarily…

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The Latest at GLI – March 2022

The Latest at GLI – March 2022

New Season, New Format: Striving to meet the needs of the expanding liver health- interested community for timely information on must-know events and news specific to our Council communities in Liver Cancer, NASH, Pediatric and Rare Liver Diseases, Liver Health Policy, and the activities of Global Liver Institute in a format and frequency that respects your busy lives we have reconfigured our newsletter schedule.

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Building Equity into the Equation: Stopping NAFLD & NASH in Black Americans

Building Equity into the Equation: Stopping NAFLD & NASH in Black Americans

Nonalcoholic steatohepatitis (NASH) has a relatively short history as a recognized health condition. The terminology for NASH and its precursor nonalcoholic fatty liver disease (NAFLD) date back to only the 1980s1. As a young disease, the stakeholders from throughout the field have the opportunity to integrate a health equity perspective into research, diagnosis…

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Global Liver Institute Announces the Fifth Annual International NASH Day on June 9

Global Liver Institute Announces the Fifth Annual International NASH Day on June 9

Washington, DC – March 7, 2022 – Global Liver Institute (GLI) will convene the fifth International NASH Day (#NASHday) on June 9, 2022 with the theme Stop NASH Now. This year, GLI is pleased to support grassroots efforts from around the globe that will raise awareness and promote diagnosis and care options in ways as unique as each community. Held annually on the second Thursday in June, #NASHDay…

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GLI’s Liver Action Network Supports World Obesity Day to Acknowledge Strong Connection Between NASH and Obesity

GLI’s Liver Action Network Supports World Obesity Day to Acknowledge Strong Connection Between NASH and Obesity

As members of Global Liver Institute’s Liver Action Network (LAN), the undersigned organizations are proud to take part in World Obesity Day, and take action to recognize the bidirectional relationship between many chronic liver diseases like nonalcoholic steatohepatitis (NASH), and obesity. Worldwide, NASH affects more than 148 million people and continues to rise each year.1 Increasing amounts…

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